Thanks to the Kings College London Institute of Psychiatry (the same people doing the Hoarding Study I recently participated in), I’ve learned compulsive hoarding is likely to be included as a new mental disorder in the Diagnostic and Statistical Manual for Mental Disorders or DSM-5. DSM-5 is due to be published in 2013.  I’m hoping this means more research and attention being devoted to treating compulsive hoarding.  I also hope it means less people thinking hoarders are just lazy deadbeats who just need to throw a garage sale.  There’s something about this being made “official” that gives me some hope.

Below are the proposed diagnostic criteria for Hoarding Disorder. All criteria A-F must be met to qualify for the diagnosis.

A. Persistent difficulty discarding or parting with possessions, regardless of their actual value.

B. This difficulty is due to a perceived need to save the items and distress associated with discarding them.

C. The symptoms result in the accumulation of possessions that congest and clutter active living areas and substantially compromise their intended use. If living areas are uncluttered, it is only because of the interventions of third parties (e.g., family members, cleaners, authorities).

D. The hoarding causes clinically significant distress or impairment in social, occupational, or other important areas of functioning (including maintaining a safe environment for self and others).

E. The hoarding is not attributable to another medical condition (e.g., brain injury, cerebrovascular disease, Prader-Willi Syndrome).

F. The hoarding is not better accounted for by the symptoms of another DSM-5 disorder (e.g., hoarding due to obsessions in Obsessive-Compulsive Disorder, decreased energy in Major Depressive Disorder, delusions in Schizophrenia or another Psychotic Disorder, cognitive deficits in Dementia, restricted interests in Autism Spectrum Disorder).

For people meeting all diagnostic criteria A-F, the following ‘specifiers’ can be noted as well:

Specify if:

With Excessive AcquisitionIf symptoms are accompanied by excessive collecting or buying or stealing of items that are not needed or for which there is no available space.

Indicate whether hoarding beliefs and behaviors are currently characterized by:

Good or fair insight: The individual recognizes that hoarding-related beliefs and behaviors (pertaining to difficulty discarding items, clutter, or excessive acquisition) are problematic.

Poor insightThe individual is mostly convinced that hoarding-related beliefs and behaviors (pertaining to difficulty discarding items, clutter, or excessive acquisition) are not problematic despite evidence to the contrary.

*I believe this is where my Mother is, leaning towards Absent insight.

Absent insight (i.e. delusional beliefs about hoarding): The individual is completely convinced that hoarding-related beliefs and behaviors (pertaining to difficulty discarding items, clutter, or excessive acquisition) are not problematic despite evidence to the contrary.

You can find more information in the DSM-5 website.


I am posting this on behalf of the King’s College London where researchers have put together a study about compulsive hoarding.  I’ll be participating to help further the awareness of the effects of hoarding on relatives, and I encourage you to get involved if you’re in a similar situation.  I’m not eligible for the compensation since there’s no way I can get my Mom to participate, and I’m not being paid to post this for King’s College in any way.  I’ve been emailing back and forth with the researchers, though, and find them to be genuinely interested and quick to respond.  Here’s hoping they learn something positive towards coping with compulsive hoarding.

Hoarding Study Needs You

Researchers at King’s College London are currently carrying out a project investigating the impact of hoarding across important areas of life (e.g. memory and planning, acquisition, familial and other interpersonal relationships).

Currently, the team is looking for individuals who either identify as a hoarder OR have a relationship with someone who hoards to complete a series of online questionnaires (approximately 25 minutes) and, potentially, a brief telephone interview (approximately 15 minutes). Participation is accompanied by a small financial compensation of £5.

As a central question in this study concerns the impact of hoarding on relationships, the team is asking that all hoarders provide one person (spouse, parent, adult child or other close acquaintance) who would be willing to complete a similar, but separate, online survey. Likewise, if you are the spouse/parent/child/etc of a hoarder, then the research asks that your hoarding relative/friend be willing to complete that portion of the project.

If you’re interested in learning more, check out the study website (www.hoardingstudy.com) or contact a member of the research team directly at: helena.drury@kcl.ac.uk